Monday, January 30, 2012

Update on what's going on

Thank you to everyone who prayed for me this afternoon.  Man, two IV's within 5 days is no fun!  How many tears I have shed.  :(  And, in case anyone is wondering, barium is disgusting.  

I am so glad that the scan is over.  This was a stressful afternoon.  I hope to hear from the doctor tomorrow letting me know what the scan showed.    

I am also waiting to hear what the biopsies showed.  According to my primary care doctor, and Sue from Dr. H's office, there are two kinds of co.litis: one that is caused by an infection and just goes away, and the other that is caused by an autoimmune issue and is chronic.  The biopsies are supposed to tell us what kind I have.  I am hoping just an infection.  

I love PPVI!  Sue from Dr. H's office called me on Friday.  She said that Dr. H did not think this was a problem fertility wise, and that I should follow the medications that the GI doctor gives.  I mentioned to her that I read about low dose naltrexone on the internet, and she said that might be something Dr. H would consider prescribing for me.  She also suggested an anti-inflammatory diet (which I'm already doing) and stress reduction.  And, she said I should ask the GI doctor if he is ok with me continuing the Biaxin on CD 1-10 in future cycles.  (I read somewhere on the internet about antibiotic usage being linked to co.litis).  

As for stress, I decided I'm going to have to carve out time to go to the gym Monday thru Friday.  I went to a Zumba class on Friday and it was a lot of fun.  There is something so freeing about dancing.  So, I am going to make it to a Zumba or piyo (combination of pilates and yoga) class every day, which means I will have to put work aside in the middle of the day.  The classes I want are around 9 in the morning, which is prime working time, but oh well.  I just have to bite the bullet on that and not care if people are trying to get ahold of me.  Apparently, stress is literally affecting my body physically, so I need to try and do something about it.  

I am feeling better physically over the last couple of days, so I am hoping the problem is infection related and is going away.  I received the annointing of the sick last Tuesday, so I bet that has something to do with it!  Also, Sue said they were putting me on their prayer list.  How awesome is PPVI?!

I also learned after talking with my mom this past weekend that my aunt had co.litis once and, according to my melodramatic doomsday mother, almost had to have a colostomy bag.  (Again, evidence of how I cannot talk to my mother about what is going on with me because she always brings up the worst case scenarios).  So, I called my aunt, and she said she had a bad case of it, was admitted to the hospital for 10 days, and then never had a problem with it again.  She did not have to change her diet or remain on any medications.  That must mean she had an infection related case.  

Sue also called back again this morning and said Dr. H said he would probably put me on the low dose naltrexone, but they need to see what the biopsies say.  I love that I have a doctor that is not only looking at my female problems, but my whole body.  What a wonderful doctor Dr. H is.  God bless him and his wonderful staff!  

Also, God bless Jelly Belly who gave me encouraging words and shared her experience with this problem, and Perfect Power in Weakness who has been so kind to me in e-mails.  Big hugs to you guys.  


  1. I am so glad that you are feeling better and are getting some awesome answers to what is going on.

    Prayers that things continue to improve.

  2. Hopefully it's just the infection kind! Go away colitis, and do not come back!! I completely agree with you, Dr. H and PPVI are the best. :) So glad you are doing better, I will keep praying for ya!

  3. Wow you've had A LOT going on! I'm SO, SO glad PPVI is there to help too. Hoping and praying it's just an infection that'll go away. Zumba on!

  4. Glad to hear you survived yet another procedure. Can't wait to see what all of your results say. Zumba and piyo sound like a lot of fun. Enjoy the stress melting away.

  5. I remember all of the diagnostic tests when I was first battling UC, not fun! But as I mentioned in my message to you, there is life after your diagnosis. I know that my UC calmed down when I eliminated stressors from my life and exercise was a big factor in getting well. I also cannot stress the importance of a good diet. I have no idea why doctors say that food doesn't affect the gut -- how is that even possible?

    Be patient with yourself. This is a very big learning curve and it can be overwhelming. Praying for you!

  6. What a busy few days for you! I am glad you are getting some answers. You remain in my prayers!

  7. I really, truly hope that your colitis is an infection!
    I am thrilled that you are putting exercise first. A BIG kudos to you on that! I'll be praying and waiting to hear about your results!